6-23-10

Got a call back from Riley's

Hey everyone. Hope all is well with everyone. Sorry I haven't been around much. It has taken me almost 4 days to finally sit down and write this blog after I got the call from Riley's. When the Dr called me on Tuesday, I never thought that she would have the news for me that she did. I thought that she would be calling me to let me know the results of his blood test like she had told me.

She did let me know that she got the blood results back from the lab. His blood protein and zinc were low even though he is on a Zinc supplement. I'm not too sure what the blood protein being low means. His lactate & pryuvate was low as well. But I don't know what that is all about either as she didn't tell me.

I also got the news that he's got something called autonomic dysfunction. He is unable to regulate anything that he has to think about such as heart rate, blood pressure, body temp (which is causing the red & blue/purple with his legs & feet) and he's unable to sweat. They say that there is a underlying issue that is causing this problem but they can't figure out what it is. Prognosis after diagnosis is 5 to 7 years depending on the severity of this neurology disorder & underlying issue.

There are 50 million things that are running through my head but right now I am not going to get into that. I just wanted to let me readers know what was going on with him and what we found out.