Riley's Children Hospital
We finally heard from them yesterday. Which is a kinda relief but then again it isn't. I still need to know what is going on with my baby boy. We have to go on Wednesday at 2:30. And the drive is about an hour and a half a way which isn't as nearly as bad as it was to travel to St Louis and back.
He still isn't baring weight on his legs even with being in PT for the last 6 months. He'll do it maybe a few times with someone forcing his legs straight (the pt) but we've only got him to do without forcing him maybe a hand full of times. Any other time his knees are at his chest and he doesn't want any part of it.
His legs are still bright red, blue and purple. And no one can give us an answer on why they are discolored. They did start him on Zinc supplement as I've said before, and said that if the Zinc problem was the reason that his legs were discolored that they would be normal colr in about 2 week to a month. Well he's been on it for a lil over 2 months. There is still no change it in.
I was told back in March to file for Disability for Zackary. After a lot of talking with my husband and a few oither family members, we decided to go forth and file the claim but not to get our hopes up as in he hasn't been diagonsised with a certain disease or condition. (Which is the frustrating part of it all) We got a call at the end of May, saying that he had been approved for disability. Which is to help us with all the cost of driving to different Drs in different states to get an answer on what is causing the problems that Zackary is having. To read his story please look in the May entries for Zackary's story.
Thanks for listening to me ramble.
He still isn't baring weight on his legs even with being in PT for the last 6 months. He'll do it maybe a few times with someone forcing his legs straight (the pt) but we've only got him to do without forcing him maybe a hand full of times. Any other time his knees are at his chest and he doesn't want any part of it.
His legs are still bright red, blue and purple. And no one can give us an answer on why they are discolored. They did start him on Zinc supplement as I've said before, and said that if the Zinc problem was the reason that his legs were discolored that they would be normal colr in about 2 week to a month. Well he's been on it for a lil over 2 months. There is still no change it in.
I was told back in March to file for Disability for Zackary. After a lot of talking with my husband and a few oither family members, we decided to go forth and file the claim but not to get our hopes up as in he hasn't been diagonsised with a certain disease or condition. (Which is the frustrating part of it all) We got a call at the end of May, saying that he had been approved for disability. Which is to help us with all the cost of driving to different Drs in different states to get an answer on what is causing the problems that Zackary is having. To read his story please look in the May entries for Zackary's story.
Thanks for listening to me ramble.
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