Dreading Summer Time???
Yes, you read it right. I am dreading summer. Not because I don't like the weather because I do. But when you have a child with a disability & he's unable to sweat. I'm scared. Truly for the first time in a long time scared. Zackary is unable to sweat. This is the first summer that I've been aware of it. What does this mean for him? He can't regulate his body temp. I'm scared that if he gets too hot that he will have a heat stroke. It could happen. The Drs have warned me that it could happen. But I can't keep my other kids cooped up in the apartment all summer. I just don't know what to do. So next time that I take him to the Dr, I'm going to ask him what I should do.
During the day, I don't have the chance to think about things because I'm constantly busy with something, whether it be the other 2 kids or something that Zack is doing (therapy, Drs appts, Etc). It's the night time that seems to get the best of me when it comes to thinking about everything that is going on with him.
I feel so alone. I feel like I don't have anyone when actually I do have a "few" friends that I talk to on a regular basis.
But they all have healthy children. None of their kids have a disability. They are constantly saying that they know what I'm going through. But they have not the slightest idea. Unless you have a child with a disability there is no way that you will understand the pain and hell that I go through on a daily basis.
Okay enough with the pity party, vent & worries for the night
2 comments:
I don't know what you're going through, but I'm here and I always will be. You're strong enough to get through this, even though at times I know you don't want to. I love you and my babies.
I kno you are sis. I don't know what I would do without you by my side through everything. I love you and my babies there too.
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